Multiple sclerosis (MS) is a chronic neurological condition that can significantly impact various aspects of daily life, including sleep. Many individuals with MS experience sleep disturbances, which can exacerbate symptoms and reduce overall quality of life. Achieving a balanced sleep schedule is crucial for managing MS symptoms and maintaining optimal health.
This comprehensive guide aims to provide practical strategies and evidence-based recommendations to help people with MS improve their sleep quality and establish a better daily sleep balance. By addressing common sleep challenges, creating a supportive sleep environment, and implementing lifestyle modifications, individuals with MS can enhance their sleep and, consequently, their overall well-being.
Understanding Multiple Sclerosis and Sleep
What is Multiple Sclerosis?
Multiple sclerosis (MS) is a chronic autoimmune disorder that affects the central nervous system, including the brain, spinal cord, and optic nerves. In MS, the immune system mistakenly attacks the protective covering (myelin) of nerve fibers, leading to inflammation, damage, and scarring (sclerosis). This damage disrupts the transmission of nerve signals, resulting in a wide range of symptoms such as fatigue, muscle weakness, numbness, and difficulty with coordination and balance[1].
How MS affects sleep patterns
MS can significantly impact sleep patterns due to various factors. Nerve damage caused by MS may lead to muscle spasms, pain, and discomfort, making it difficult to fall asleep or stay asleep. Additionally, bladder and bowel dysfunction, common in MS, can cause frequent nighttime disruptions. Medications used to manage MS symptoms may also contribute to sleep disturbances, such as insomnia or daytime drowsiness[2].
Common sleep disorders associated with MS
Several sleep disorders are more prevalent in individuals with MS compared to the general population. These include:
- Insomnia: Difficulty falling asleep, staying asleep, or waking up too early
- Restless Legs Syndrome (RLS): An irresistible urge to move the legs, often accompanied by uncomfortable sensations
- Sleep apnea: Repeated pauses in breathing during sleep, leading to disrupted sleep and daytime fatigue[3]
The importance of sleep for MS patients
Adequate sleep is crucial for individuals with MS, as it plays a vital role in maintaining overall health and managing symptoms. Sleep helps to:
- Restore and repair the body
- Enhance cognitive function and memory consolidation
- Regulate immune function and inflammation
- Improve mood and emotional well-being
By prioritizing sleep and addressing sleep disturbances, people with MS can better manage their symptoms, improve their quality of life, and promote long-term health.
Assessing Your Sleep Quality
Keeping a sleep diary
One of the most effective ways to assess your sleep quality is by keeping a sleep diary. A sleep diary is a daily log that tracks your sleep patterns, habits, and any factors that may influence your sleep. To maintain a sleep diary, record the following information each morning:
- Bedtime and wake-up time
- Time it took to fall asleep
- Number and duration of nighttime awakenings
- Daytime naps and their duration
- Medications, alcohol, or caffeine consumed
- Subjective sleep quality rating
Keeping a sleep diary for at least two weeks can help identify patterns and potential issues affecting your sleep[4].
Recognizing signs of poor sleep
Several signs may indicate that you are experiencing poor sleep quality. These include:
- Difficulty falling asleep or staying asleep
- Frequent nighttime awakenings
- Waking up feeling unrefreshed or tired
- Daytime fatigue, drowsiness, or irritability
- Difficulty concentrating or remembering things[5]
If you consistently experience these signs, it may be time to take steps to improve your sleep quality.
Sleep hygiene checklist
Sleep hygiene refers to the habits and practices that promote healthy sleep. Use this checklist to assess your current sleep hygiene:
Sleep Hygiene Practices | Yes | No |
---|---|---|
Consistent sleep schedule | ||
Cool, dark, and quiet bedroom | ||
Comfortable mattress and pillows | ||
Avoiding electronic devices before bed | ||
Relaxing bedtime routine |
When to consult a sleep specialist
If you have consistently poor sleep quality that does not improve with lifestyle changes and sleep hygiene practices, it may be time to consult a sleep specialist. A sleep specialist can help diagnose and treat underlying sleep disorders, such as insomnia, restless legs syndrome, or sleep apnea, which are more common in individuals with MS[6]. They may recommend additional treatments, such as cognitive-behavioral therapy for insomnia (CBT-I) or medications, to improve your sleep quality.
Creating an Optimal Sleep Environment
The importance of a comfortable sleep space
Creating a comfortable and conducive sleep environment is essential for promoting better sleep quality. A well-designed sleep space can help you fall asleep faster, stay asleep longer, and wake up feeling more refreshed. For individuals with MS, a supportive sleep environment is particularly important, as it can help alleviate symptoms and improve overall well-being[7].
Controlling light exposure
Light plays a crucial role in regulating your body’s sleep-wake cycle. To create an optimal sleep environment, consider the following tips:
- Minimize exposure to bright light, especially from electronic devices, in the evening
- Use blackout curtains or an eye mask to block out external light during sleep
- Ensure your bedroom has adequate exposure to natural light during the day to help regulate your circadian rhythm[8]
Optimizing temperature and ventilation
The ideal bedroom temperature for sleep is between 60°F and 67°F (15.6°C and 19.4°C). A slightly cool room can help facilitate the natural drop in body temperature that occurs during sleep. Ensure your bedroom has adequate ventilation to maintain a comfortable, fresh air environment. If you are sensitive to temperature fluctuations, consider using a fan or a temperature-regulating mattress or bedding.
Choosing the right mattress and pillows
A supportive mattress and pillows are essential for maintaining proper spinal alignment and reducing pressure points during sleep. For individuals with MS, the right mattress and pillows can also help alleviate pain and discomfort associated with the condition. When selecting a mattress, consider factors such as firmness, pressure relief, and temperature regulation. Pillows should provide adequate support for your head and neck, keeping your spine in a neutral position[9].
Pros | Cons |
---|---|
Memory foam: Pressure relief and body contouring | Memory foam: Heat retention and difficulty moving |
Latex: Durability and natural materials | Latex: Expensive and heavy |
Hybrid: Combines benefits of foam and coils | Hybrid: Can be heavy and more expensive |
Adjustable: Customizable positions for comfort | Adjustable: Higher cost and potential maintenance issues |
Creating a relaxing bedtime atmosphere
A calming and relaxing bedtime atmosphere can help signal to your body that it’s time to sleep. Incorporate soothing elements into your sleep environment, such as:
- Soft, comfortable bedding
- Calming colors and décor
- Gentle ambient noise, like white noise or nature sounds
- Pleasant scents, such as lavender or chamomile, known for their relaxing properties
By creating a peaceful and inviting sleep space, you can promote better sleep quality and improve your overall well-being.
Establishing a Consistent Sleep Schedule
The benefits of a regular sleep routine
Establishing and maintaining a consistent sleep schedule is one of the most important steps in improving sleep quality for individuals with MS. A regular sleep routine helps to synchronize your body’s internal clock, or circadian rhythm, which regulates sleep-wake cycles. By going to bed and waking up at the same times each day, you can train your body to naturally feel sleepy at bedtime and more alert upon waking[10].
Setting a consistent bedtime and wake-up time
To establish a consistent sleep schedule, follow these guidelines:
- Choose a bedtime that allows for sufficient sleep (7-9 hours for adults)
- Set a consistent wake-up time, even on weekends
- Create a relaxing bedtime routine to help you unwind
- Avoid napping late in the day, as it can interfere with nighttime sleep
It may take some time for your body to adjust to a new sleep schedule, but consistently following these steps will help regulate your sleep-wake cycle[11].
Adjusting to changes in your sleep schedule
There may be times when you need to adjust your sleep schedule, such as during travel or due to changes in your work or personal life. To minimize the impact of these changes on your sleep quality, try the following:
- Gradually adjust your bedtime and wake-up time by 15-30 minutes per day until you reach your desired schedule
- Use light exposure strategically, seeking bright light in the morning to help wake up and avoiding bright light in the evening to promote sleepiness
- Maintain your regular bedtime routine as much as possible, even in new environments
- Be patient with yourself and allow your body time to adapt to the new schedule
The role of naps in your sleep schedule
For individuals with MS, fatigue is a common symptom that can be managed, in part, through strategic napping. However, it’s essential to balance the benefits of napping with the potential impact on nighttime sleep. If you choose to nap, consider the following guidelines:
- Limit naps to 20-30 minutes to avoid entering deep sleep stages
- Nap earlier in the day, preferably before 3 pm
- Create a comfortable, cool, and dark environment for napping
- Give yourself time to wake up fully before resuming activities[12]
By establishing a consistent sleep schedule and strategically incorporating naps when needed, individuals with MS can improve their sleep quality and better manage fatigue.
Managing MS Symptoms for Better Sleep
The impact of MS symptoms on sleep quality
Multiple sclerosis can present a variety of symptoms that may interfere with sleep quality. These symptoms include pain, spasticity, bladder dysfunction, and temperature sensitivity. By effectively managing these symptoms, individuals with MS can improve their sleep quality and overall well-being[13].
Strategies for managing pain and discomfort
Pain and discomfort are common symptoms of MS that can disrupt sleep. To manage pain and promote better sleep, consider the following strategies:
- Engage in regular physical activity, as appropriate for your fitness level and MS symptoms
- Practice relaxation techniques, such as deep breathing, progressive muscle relaxation, or meditation
- Use heat or cold therapy, depending on your preferences and the type of pain
- Experiment with different sleeping positions and supportive pillows to alleviate pressure points
- Consult with your healthcare provider about pain management options, such as medications or physical therapy
Addressing spasticity and muscle spasms
Spasticity and muscle spasms are other common MS symptoms that can interfere with sleep. To manage these symptoms and improve sleep quality, try the following:
- Perform stretching and range-of-motion exercises daily to help reduce muscle tightness
- Use positioning aids, such as pillows or wedges, to support affected limbs and promote comfort
- Consider medications, such as muscle relaxants or botulinum toxin injections, as prescribed by your healthcare provider[14]
- Explore alternative therapies, like massage or acupuncture, which may help alleviate spasticity and promote relaxation
Managing bladder and bowel dysfunction
Bladder and bowel dysfunction can lead to frequent nighttime bathroom visits, disrupting sleep. To minimize the impact of these symptoms on sleep quality, consider the following tips:
- Limit fluid intake in the evening, especially caffeine and alcohol, which can stimulate the bladder
- Practice pelvic floor exercises to improve bladder control
- Establish a regular bowel routine to minimize nighttime disruptions
- Use absorbent products or bedside commodes to manage incontinence and reduce the need for nighttime bathroom trips
- Talk to your healthcare provider about medications or other treatments for bladder and bowel dysfunction[15]
Coping with temperature sensitivity
Many individuals with MS experience temperature sensitivity, which can affect sleep quality. To manage temperature sensitivity and promote better sleep, try these strategies:
Strategy | Description |
---|---|
Cooling products | Use cooling pillows, mattress pads, or bed fans to regulate body temperature during sleep. |
Breathable bedding | Choose lightweight, breathable sheets and sleepwear to help dissipate heat and maintain comfort. |
Room temperature | Keep your bedroom cool and well-ventilated, using air conditioning or fans as needed. |
Pre-bedtime cooling | Take a cool shower or bath before bed to lower body temperature and promote relaxation. |
By addressing MS symptoms and their impact on sleep, individuals with MS can create a more comfortable and conducive environment for restful, restorative sleep.
Lifestyle Modifications for Improved Sleep
The connection between lifestyle choices and sleep quality
In addition to managing MS symptoms and creating a conducive sleep environment, making positive lifestyle choices can significantly impact sleep quality. Lifestyle factors such as diet, exercise, stress management, and social interactions play a crucial role in promoting healthy sleep habits[16].
Incorporating physical activity into your daily routine
Regular physical activity can help improve sleep quality by reducing stress, promoting relaxation, and regulating sleep-wake cycles. For individuals with MS, engaging in appropriate exercises can also help manage symptoms and maintain overall health. Consider the following tips for incorporating physical activity into your daily routine:
- Choose activities that you enjoy and that are suitable for your fitness level and MS symptoms
- Aim for at least 30 minutes of moderate-intensity exercise most days of the week
- Break up exercise into shorter sessions if needed, such as three 10-minute walks throughout the day
- Include a mix of aerobic exercises, strength training, and flexibility exercises
- Listen to your body and adjust your activity level as needed based on fatigue or other symptoms
Making healthy dietary choices
A balanced, nutrient-rich diet can support better sleep by providing the necessary building blocks for neurotransmitters involved in sleep regulation. Additionally, certain dietary choices may help alleviate MS symptoms that interfere with sleep[17]. Consider the following dietary tips:
- Emphasize whole, minimally processed foods such as fruits, vegetables, whole grains, lean proteins, and healthy fats
- Limit processed foods, added sugars, and unhealthy fats
- Stay hydrated by drinking plenty of water throughout the day
- Avoid large meals close to bedtime, as this can cause discomfort and disrupt sleep
- Limit caffeine and alcohol intake, especially in the evening, as they can interfere with sleep quality
Managing stress and promoting relaxation
Stress and anxiety can significantly impact sleep quality, making it difficult to fall asleep and stay asleep. Engaging in stress management techniques and promoting relaxation can help improve sleep quality. Try the following strategies:
Technique | Description |
---|---|
Deep breathing | Practice slow, deep breathing to promote relaxation and reduce stress. |
Progressive muscle relaxation | Systematically tense and relax muscle groups to release tension and induce relaxation. |
Mindfulness meditation | Focus on the present moment, acknowledging thoughts and feelings without judgment. |
Yoga or tai chi | Engage in gentle, low-impact exercises that combine physical movement, breathing, and meditation. |
Enjoyable hobbies | Participate in activities you enjoy, such as reading, listening to music, or crafting, to reduce stress and promote relaxation. |
Maintaining social connections and support
Strong social connections and support systems can help reduce stress, improve mood, and promote better sleep.Engage in regular social activities, whether in-person or virtual, to maintain a sense of connection and support. Sharing your experiences with others who understand the challenges of living with MS can also provide valuable emotional support and practical tips for managing symptoms and improving sleep quality[18].
By making positive lifestyle choices and incorporating stress management techniques, individuals with MS can create a foundation for better sleep and overall well-being.
Medical Interventions and Treatments
The role of healthcare providers in addressing sleep issues
Healthcare providers play a crucial role in helping individuals with MS manage sleep issues. By working closely with your neurologist, primary care physician, and other members of your healthcare team, you can develop a comprehensive plan to address sleep disturbances and improve sleep quality[19]. Your healthcare providers can help by:
- Assessing the underlying causes of your sleep issues
- Recommending lifestyle modifications and sleep hygiene practices
- Prescribing medications or other treatments to manage MS symptoms that interfere with sleep
- Referring you to sleep specialists or other professionals as needed
Medications for managing sleep disturbances
In some cases, medications may be necessary to help manage sleep disturbances in individuals with MS. Your healthcare provider may prescribe medications to address specific symptoms or underlying sleep disorders, such as:
Medication Type | Purpose |
---|---|
Sleep aids | To help with falling asleep or staying asleep, such as sedative-hypnotics or melatonin agonists. |
Antidepressants | To manage mood disorders that can impact sleep, such as selective serotonin reuptake inhibitors (SSRIs). |
Pain relievers | To alleviate pain that interferes with sleep, such as acetaminophen, NSAIDs, or prescription pain medications. |
Muscle relaxants | To reduce spasticity and muscle spasms that disrupt sleep, such as baclofen or tizanidine. |
Anticonvulsants | To address neuropathic pain or other neurological symptoms that impact sleep, such as gabapentin or pregabalin. |
Non-pharmacological interventions for sleep
In addition to medications, non-pharmacological interventions can be effective in improving sleep quality for individuals with MS[20]. These interventions may include:
- Cognitive-behavioral therapy for insomnia (CBT-I): A structured program that helps identify and change thoughts and behaviors that interfere with sleep.
- Sleep hygiene education: Learning about habits and practices that promote healthy sleep, such as maintaining a consistent sleep schedule and creating a comfortable sleep environment.
- Relaxation techniques: Practicing methods like deep breathing, progressive muscle relaxation, or mindfulness to reduce stress and promote relaxation.
- Light therapy: Exposure to bright light during the day to help regulate sleep-wake cycles, particularly for those with circadian rhythm disorders.
Addressing co-occurring sleep disorders
Individuals with MS may also experience co-occurring sleep disorders, such as restless legs syndrome (RLS), periodic limb movement disorder (PLMD), or sleep apnea. These disorders can further exacerbate sleep disturbances and require specific treatments[21]. If you suspect you may have a co-occurring sleep disorder, discuss your concerns with your healthcare provider, who may refer you to a sleep specialist for further evaluation and treatment.
By working closely with your healthcare team and exploring both pharmacological and non-pharmacological interventions, you can effectively manage sleep disturbances and improve your overall sleep quality while living with MS.
Monitoring Progress and Maintaining Sleep Hygiene
Tracking sleep patterns and symptoms
Monitoring your sleep patterns and symptoms is an essential part of managing sleep disturbances and maintaining good sleep hygiene when living with MS. By keeping track of your sleep habits and any associated symptoms, you can identify trends, triggers, and the effectiveness of various interventions[22]. Consider using the following tools to track your sleep:
- Sleep diary: Record your sleep and wake times, perceived sleep quality, and any symptoms or factors that may have impacted your sleep.
- Wearable devices: Utilize fitness trackers or smartwatches that monitor sleep duration, stages, and quality.
- Mobile apps: Use sleep tracking apps that allow you to input sleep data and provide insights and recommendations based on your patterns.
Adjusting strategies based on progress and feedback
As you implement various strategies to improve your sleep, it’s essential to regularly assess their effectiveness and make adjustments as needed. Evaluate your progress by considering factors such as:
- Improvements in sleep duration and quality
- Reduction in MS symptoms that interfere with sleep
- Changes in daytime fatigue, mood, and cognitive function
- Overall sense of well-being and quality of life
If you find that certain strategies are not providing the desired results, don’t hesitate to modify your approach or consult with your healthcare provider for additional guidance[23].
Maintaining a consistent sleep hygiene routine
Establishing and maintaining a consistent sleep hygiene routine is crucial for long-term sleep quality and well-being. Incorporate the following practices into your daily routine to promote healthy sleep habits:
Component | Description |
---|---|
Consistent sleep schedule | Aim to go to bed and wake up at the same time every day, even on weekends. |
Relaxing bedtime routine | Engage in calming activities before bed, such as reading, listening to soothing music, or taking a warm bath. |
Comfortable sleep environment | Ensure your bedroom is dark, quiet, cool, and equipped with a supportive mattress and pillows. |
Limited screen time | Avoid electronic devices at least one hour before bed, as the blue light can interfere with sleep. |
Regular exercise | Engage in physical activity during the day to promote better sleep at night, but avoid intense exercise close to bedtime. |
Ongoing communication with healthcare providers
Maintaining open communication with your healthcare providers is essential for long-term sleep management in MS. Regularly discuss your sleep concerns, progress, and any new or persistent symptoms with your healthcare team[24]. They can provide ongoing support, adjust treatment plans as needed, and help you navigate any challenges that may arise.
By consistently monitoring your sleep patterns, adjusting strategies based on progress, maintaining a sleep hygiene routine, and communicating with your healthcare providers, you can effectively manage sleep disturbances and promote better sleep quality while living with MS.
Frequently Asked Questions
Multiple sclerosis can affect sleep in various ways. MS symptoms such as pain, spasticity, bladder dysfunction, and restless legs syndrome can disrupt sleep. Additionally, medications used to treat MS may have side effects that impact sleep quality. Fatigue, a common symptom of MS, can also lead to daytime sleepiness and napping, which can interfere with nighttime sleep.
Some common sleep disorders associated with MS include insomnia, sleep apnea, restless legs syndrome (RLS), and circadian rhythm disorders. Insomnia can make it difficult to fall asleep or stay asleep, while sleep apnea causes breathing disruptions during sleep. RLS leads to an uncomfortable sensation in the legs and an urge to move them, which can interfere with sleep onset. Circadian rhythm disorders involve a misalignment between the body’s internal clock and the external environment.
To create a sleep-friendly environment, ensure your bedroom is dark, quiet, and cool. Use comfortable bedding and pillows that provide adequate support. Remove electronic devices and distractions from the bedroom, and establish a relaxing bedtime routine that helps you unwind before sleep. If necessary, consider using earplugs, white noise machines, or blackout curtains to minimize disruptions.
Lifestyle changes that can improve sleep with MS include maintaining a consistent sleep schedule, engaging in regular physical activity, managing stress through relaxation techniques, and following a balanced diet. Avoid caffeine, alcohol, and large meals close to bedtime, as they can disrupt sleep. Incorporate stress-reducing activities like meditation, deep breathing, or gentle yoga into your daily routine to promote better sleep.
To address sleep issues, openly communicate with your healthcare provider about your sleep concerns and any symptoms that may be interfering with your sleep. Keep a sleep diary to track your sleep patterns and share this information with your provider. They can help identify underlying causes, recommend lifestyle modifications, and prescribe appropriate treatments or medications to manage sleep disturbances.
Various medications can be prescribed to help with sleep problems in MS, depending on the specific issue. Sleep aids, such as sedative-hypnotics or melatonin agonists, can assist with falling asleep or staying asleep. Antidepressants may be used to manage mood disorders that impact sleep, while pain relievers, muscle relaxants, and anticonvulsants can address MS symptoms that disrupt sleep. Always consult with your healthcare provider before starting any new medications.
Yes, several non-pharmacological treatments can be effective for managing sleep disturbances in MS. Cognitive-behavioral therapy for insomnia (CBT-I) helps identify and change thoughts and behaviors that interfere with sleep. Sleep hygiene education focuses on developing habits and practices that promote healthy sleep. Relaxation techniques, such as deep breathing or progressive muscle relaxation, can reduce stress and promote better sleep. Light therapy may also be used to regulate sleep-wake cycles, particularly for those with circadian rhythm disorders.
To maintain good sleep hygiene over time with MS, consistently follow a sleep-promoting routine. This includes sticking to a regular sleep schedule, creating a relaxing bedtime routine, and ensuring your sleep environment is comfortable and conducive to rest. Monitor your sleep patterns and symptoms, and make adjustments to your strategies as needed based on your progress and feedback. Regularly communicate with your healthcare providers about your sleep concerns and any new or persistent symptoms to receive ongoing support and guidance.
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